Healthcare access and quality of birth care: Narratives of women living with obstetric fistula in rural Tanzania

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Study Justification:
– The study aims to understand the challenges faced by women in rural Tanzania in accessing adequate obstetric care, leading to the development of obstetric fistula.
– By using women’s narratives, the study provides a rich description of the experiences and complexities involved in accessing obstetric care.
– The study highlights the importance of empowering women socially and financially, upgrading primary health care facilities, and increasing the number of skilled personnel to promote health care facility deliveries.
Study Highlights:
– The study identifies four general story lines from women’s descriptions of their inability to access quality obstetric care in a timely manner: failing to decide on a health care facility for delivery, lacking money to get to a health care facility, lacking transportation to a health care facility, and lacking quality birth care at the health care facility.
– The narratives provide insights into the lack of decision-making power, financial resources, and transportation options for women in rural Tanzania.
– The study emphasizes the need for comprehensive emergency obstetric care (CEmOC) facilities, as well as the importance of providing high-quality birth care.
Recommendations:
– Empower women socially and financially to improve their decision-making power and access to obstetric care.
– Upgrade primary health care facilities to provide comprehensive emergency obstetric care (CEmOC).
– Increase the number of skilled personnel to ensure adequate care during labor and delivery.
– Promote health care facility deliveries by addressing the barriers related to decision-making, financial resources, and transportation.
Key Role Players:
– Policy makers and government officials responsible for healthcare policies and funding.
– Non-governmental organizations (NGOs) involved in healthcare service delivery, such as the Comprehensive Community Based Rehabilitation in Tanzania (CCBRT) hospital.
– Health care providers working in primary health care facilities who can identify and facilitate transportation of women with obstetric fistula to specialized treatment centers.
Cost Items for Planning Recommendations:
– Funding for social empowerment programs targeting women, including education and economic support.
– Budget for upgrading primary health care facilities to provide comprehensive emergency obstetric care (CEmOC), including infrastructure, equipment, and training.
– Allocation of resources for increasing the number of skilled personnel, including recruitment, training, and retention strategies.
– Investment in transportation infrastructure and services to improve access to health care facilities for women in rural areas.

The strength of evidence for this abstract is 8 out of 10.
The evidence in the abstract is strong because it presents the findings of a qualitative study that used narrative research to explore the challenges faced by women in accessing obstetric care in rural Tanzania. The study provides rich descriptions of women’s experiences and identifies common themes related to decision-making, financial constraints, transportation, and quality of care. The study also mentions the use of a previous study on access to and quality of birth care in Tanzania to inform the research. To improve the evidence, the abstract could include more details about the methodology, such as the sampling strategy and data analysis process. Additionally, it would be helpful to provide information on the limitations of the study and potential implications for policy and practice.

Background: Increasing births with skilled attendants and increasing health facilities with Emergency Obstetric Care (EmOC) can reduce maternal mortality and are considered critical interventions for ensuring safe motherhood. Despite Tanzania’s policy to support women to give birth with the assistance of skilled personnel, some women do not access this care. This article uses women’s stories to illustrate the challenges that caused them to fail to access adequate obstetric care in a timely manner, hence causing the development of fistulas. Methods: This paper presents the narratives of 16 women who were conveniently selected based on their experiences of not being able to access adequate obstetric care in timely manner. The analysis was guided by recommendations for the identification and interpretation of narratives, and identified important components of women’s experiences, paying attention to commonalities, differences and areas of emphasis. Semi-structured interviews were carried out at CCBRT hospital in Dar es Salaam. Results: Four (4) general story lines were identified from women description of their inability to access quality obstetric care in a timely manner. These were; failing to decide on a health care facility for delivery, lacking money to get to a health care facility, lacking transportation to a health care facility and lacking quality birth care at the health care facility. Conclusion: Women were unable to reach to the health care facilities providing comprehensive emergency obstetric care (CEmOC) in time because of their lack of decision-making power, money and transportation, and those who did reach the facilities received low quality birth care. Empowering women socially and financially, upgrading primary health care facilities to provide CEmOC and increased numbers of skilled personnel would promote health care facility deliveries.

This study uses narrative research, a qualitative approach on the propensity of humans to narrate experiences, and draws on data from a previous study on access to and quality of birth care in Tanzania: The problem of obstetric fistula and its implication conducted between 2010 and 2012 [30]. Stories provide a way for individuals to reflect on their experiences, create meaning, and imagine life’s possibilities [31]. They are concrete, personal and temporal accounts in which the narrator sets the scene and describes the main event and their resolution, including the central point of the story. In this study, stories from an in-depth analysis of women’s experience of labour and delivery provide a way to understand the complexities inherent in how women who live in rural settings of Tanzania access adequate obstetric care. By identifying the main story lines, a rich description of labour and delivery in the context of women’s lived experience of delays in accessing adequate obstetric care is provided [32]. The usefulness of stories in enriching our understanding of health and illness experiences has been recognised [31]. As described elsewhere [25], the study was conducted at the Comprehensive Community Based Rehabilitation in Tanzania (CCBRT) hospital. CCBRT is a private, non-governmental organisation (NGO) in Dar es Salaam that serves as a major service delivery point for obstetric fistula repair in the Coastal region. It also receives patients from the central and eastern part of the country. The hospital has a 21-bed fistula ward, and a hostel where fistula patients live while awaiting fistula repair. It performs approximately 400 vesico-vaginal fistula (VVF) and recto-vaginal fistula (RVF) surgeries each year. The hospital has an active case finding program that traces patients in rural areas and brings them to the hospital for surgical treatment free of charge. This is done using a mobile phone based money transfer service to send cash to obstetric fistula patients for transportation costs to come to CCBRT. The program is facilitated by health care providers working in the primary health care facilities, who identify, communicate and facilitate transportation of women with obstetric fistula to CCBRT for treatment. The hospital also implements an incentive scheme for the identification of obstetric fistula cases. A convenience sample of 16 women affected by obstetric fistula was recruited for semi-structured interviews. It was essential to use convenience sampling because women were recruited from the fistula ward, and some were recruited after fistula repair. Therefore, their recruitment depended on their health condition. The inclusion criteria were women with fistula admitted to CCBRT for surgical repair (before or after fistula repair), ability to speak Kiswahili and willing to participate in the study. A senior nurse-midwife in the fistula ward aided in identifying women who met the inclusion criteria, explained the purpose and the method of the study, including principles of confidentiality, and arranged for a suitable time for an interview. All participants provided written informed consent. Each woman participated in an audio recorded, semi-structured interview [33] that lasted about 1 h. During the interviews, women were encouraged to tell their stories of labour and delivery before they developed fistula. These interviews were conducted by the first author in the room adjacent to fistula ward. The interview room was quiet and out of sight and hearing range of other fistula patients and staff; this ensured the women’s privacy. The principle of saturation guided the sampling process. Saturation was achieved after 16 interviews, at which point answers from the women seemed to repeat information gained earlier and little new information was attained [34]. The semi-structured interview guide included topics and probing questions focussing on women’s experiences of labour and delivery (see Table 1). The interviewer used additional probing questions to clarify aspects of stories where necessary. Prompts and probes were used to encourage women to extend their responses and to provide stories that are more complete. Most of the participants spoke openly during all interviews. Semi-structured interview guide for women affected by fistula Data analysis was guided by recommendations for the identification and interpretation of narratives [35]. The audio recorded interviews were transcribed and read several times to identify the parts of the interview that made up each woman’s story. In this stage, the audio recorded interviews were reviewed to verify the written/transcribed interviews. Relevant sections of the interview were marked accordingly. These were all texts that described women experiences of delay in accessing obstetric care. The interviews were re-read to capture the universal impression of each woman’s story. To facilitate this, the author prepared brief summaries of each woman’s narrative, highlighting general impressions, as well as unusual features, of each story. The authors systematically reviewed summaries of the stories to identify the central narrative or story lines that women used to explain their experiences of being unable to access obstetric care during labour and delivery (See Table 2). Decisions were made through consensus and in cases of disagreements, the authors returned to the transcript to ensure interpretations were grounded in the data. Using these central narratives, the interviews were re-read and coded. Example of the process of analysis The authors then probed each central narrative [35], whereby the process began by reading all relevant coded segments. Attention was given to the identification of important components of the stories, what was emphasized and the similarities and differences in the way the stories were told. All texts from the interviews were first analysed for identification of delay patterns in accessing obstetric care. Women’s narratives were organised according to the “three delays” model [29]. The research team crosschecked analysis and discussed and agreed on the sorting of codes and naming of categories.

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Based on the information provided, here are some potential innovations that could improve access to maternal health:

1. Mobile health clinics: Implementing mobile health clinics that can travel to rural areas and provide comprehensive obstetric care, including skilled attendants and emergency obstetric care, can help overcome transportation barriers and bring healthcare services closer to women in need.

2. Telemedicine: Using telemedicine technology, such as video consultations and remote monitoring, can enable healthcare providers to remotely assess and monitor pregnant women in rural areas. This can help bridge the gap between women and healthcare facilities, allowing for timely access to quality care.

3. Community health workers: Training and deploying community health workers who are equipped with the necessary skills and resources to provide basic obstetric care and education can improve access to maternal health services in remote areas. These workers can also serve as a link between women and healthcare facilities, providing guidance and support throughout the pregnancy and childbirth process.

4. Financial support programs: Implementing financial support programs that provide subsidies or vouchers for transportation costs to healthcare facilities can help address the financial barriers faced by women in accessing obstetric care. This can ensure that women have the means to reach healthcare facilities in a timely manner.

5. Empowerment programs: Implementing programs that empower women socially and financially can help address the underlying factors that contribute to their inability to access obstetric care. This can include initiatives that promote women’s decision-making power, education on reproductive health rights, and economic empowerment opportunities.

6. Strengthening primary healthcare facilities: Upgrading and strengthening primary healthcare facilities in rural areas to provide comprehensive emergency obstetric care (CEmOC) can improve access to quality care closer to women’s homes. This can include training healthcare providers, ensuring the availability of necessary equipment and supplies, and improving infrastructure.

These innovations, when implemented together, can help improve access to maternal health services and reduce the barriers faced by women in rural areas.
AI Innovations Description
Based on the information provided, the recommendation to improve access to maternal health in rural Tanzania is as follows:

1. Empower women socially and financially: Women in rural areas often lack decision-making power and financial resources to access adequate obstetric care. Empowering women through education, awareness campaigns, and economic support can help them make informed decisions about their healthcare and overcome financial barriers.

2. Upgrade primary health care facilities to provide comprehensive emergency obstetric care (CEmOC): Many women in rural areas face challenges in reaching healthcare facilities that provide CEmOC. Upgrading primary health care facilities to offer comprehensive obstetric care services, including emergency obstetric care, can ensure that women have access to quality care closer to their homes.

3. Increase the number of skilled personnel: The shortage of skilled healthcare providers in rural areas contributes to the lack of quality birth care. Increasing the number of skilled personnel, such as midwives and obstetricians, in rural healthcare facilities can improve the availability and quality of maternal health services.

By implementing these recommendations, access to maternal health can be improved in rural Tanzania, reducing maternal mortality and promoting safe motherhood.
AI Innovations Methodology
Based on the provided information, here are some potential recommendations to improve access to maternal health:

1. Strengthening decision-making power: Empowering women socially and financially can help them make informed decisions about their healthcare. This can be done through community education programs, women’s empowerment initiatives, and financial support for healthcare expenses.

2. Improving transportation infrastructure: Lack of transportation is a major barrier to accessing maternal healthcare. Investing in transportation infrastructure, such as roads and ambulances, can help women reach healthcare facilities in a timely manner. Additionally, implementing innovative transportation solutions like mobile clinics or telemedicine can improve access to healthcare in remote areas.

3. Upgrading primary healthcare facilities: Enhancing the capacity of primary healthcare facilities to provide comprehensive emergency obstetric care (CEmOC) can ensure that women have access to quality maternal healthcare closer to their homes. This can involve training healthcare providers, equipping facilities with necessary medical equipment, and improving referral systems.

4. Increasing skilled personnel: Addressing the shortage of skilled healthcare providers, particularly in rural areas, is crucial for improving access to maternal health services. This can be achieved through initiatives such as training and deploying more midwives and other skilled birth attendants, incentivizing healthcare professionals to work in underserved areas, and implementing telemedicine or teleconsultation services.

To simulate the impact of these recommendations on improving access to maternal health, a methodology could include the following steps:

1. Define the target population: Identify the specific population group or geographic area that will be the focus of the simulation.

2. Collect baseline data: Gather relevant data on the current state of maternal health access in the target population, including indicators such as maternal mortality rates, healthcare facility availability, transportation infrastructure, and healthcare workforce.

3. Define simulation parameters: Determine the specific variables and parameters that will be used to simulate the impact of the recommendations. This could include factors such as the number of empowered women, improved transportation coverage, upgraded healthcare facilities, and increased skilled personnel.

4. Develop a simulation model: Use a modeling approach, such as system dynamics modeling or agent-based modeling, to create a simulation model that incorporates the defined parameters. This model should simulate the interactions and dynamics between the different variables and how they influence access to maternal health.

5. Run simulations: Run multiple simulations using different scenarios and combinations of the defined parameters to assess the potential impact of the recommendations on improving access to maternal health. This could involve varying the levels of empowerment, transportation coverage, facility upgrades, and skilled personnel.

6. Analyze results: Analyze the simulation results to evaluate the potential impact of the recommendations on access to maternal health. This could include assessing changes in maternal mortality rates, healthcare facility utilization, travel time to healthcare facilities, and availability of skilled birth attendants.

7. Refine and iterate: Based on the analysis of the simulation results, refine the simulation model and parameters as needed. Iterate the simulation process to further explore different scenarios and optimize the recommendations for improving access to maternal health.

It’s important to note that simulation models are simplifications of complex systems and may have limitations. Therefore, the results should be interpreted with caution and validated with real-world data and evidence.

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